Friday, October 31, 2008

“To be tested is good. The challenged life may be the best therapist.”- Gail Sheehy

The pathology report suggested CHI. Chronic Histiocytic Intervillositis. I have done a ton of reseach on it and have found only one other women who has it. It’s basically and immune problem where my body attacks the placenta filling up the spaces between the uterus and placenta with white blood cells cutting off the nutrients to the baby. From what I have read, it is uncommon and suggests poor fetal outcome. My OB referred me to an RE. I went three weeks ago. He tested my thyroid and ran tests for Rheumatoid Arthritis and Lupus. He was not sure if the CHI started once I got pregnant and continued until it cut of the nutrients to the baby or if the CHI was a result of the baby passing and my body trying to expel it. The tests came back negative and my thyroid was slightly off so he adjusted my medicine. I have to go back to him in 2 weeks. The RE was also supposed to go see my pathology slides, which he still has not done because the pathologist has been on vacation. So, I was very confused at to what my next step is. I also had told him that I tested slightly positive for rheumatoid arthritis when I was a kid so he made me track down those records and I plan on sending them to him next week. I asked him if he would treat me once I got pregnant or if an MFM would. He said that once I get pregnant I would see my regular OB and that he would refer me to an MFM. I asked him, if this CHI starts as soon as I get pregnant shouldn’t I be treated immediately and he said a rheumatologist would treat me with steroids. Couldn’t an MFM do this as well? Do I have to see an RE, OB MFM and a rheumatologist?? Should I make an appointment now with an MFM or wait?? If I make an appointment with an MFM will it seem like I am jumping ahead to fast? The waiting is killing me. I just finished AF and I though t I would have been able to TTC by now. What do you think? Wait for the RE or make an appointment with an MFM now? I want to trust the RE but I am so skeptical, considering that this CHI is so uncommon and not many Dr. know about it. I am afraid that if I get pregnant, by the time I get to see an MFM it might be too late. Am I just being over anxious? What are your experiences with MFM’s? Did you have prepregnancy consultations or were you referred after you got pregnant? I am so confused!!!....

Friday, October 17, 2008

Sometimes I even ask myself if all this has really happened, if its pictures dwell in truth in my memory, and not merely in my imaginatio-Jules Verne

So much has happened in this past month. On Sept. 25 I anxiously waited form my OB to call me with the pathology results. I was expecting him to tell me that the baby dies due to a chromosone issue or that the test were inconclusive. I was ready to accept either. I had made peace with the fact that my baby was gone and I was anxious to get new that it would be ok ttc again.

That night I waited by the phone and my OB called at 8pm. He had devistating news. My baby was completely healthy. My body was the culprit. The pathology report suggested CHI. Chronic Histiocytic Intervillositis. Dr. Gallo hadn't seen it in 25 years. He told me that CHi suggests poor fetal outcome for future pregnancies. I was in shock!!! Now what? He suggested I see a Reporductive Endocryologist. I made the appointment with Dr. Cho and waited four weeks to see him.

I don't think Dr. Cho is convinced of the CHI. He is going to see my pathology slides himself. He also ran test for RA and Lupus which came back negative. I the CGI does exist than it can be treated with steroids, but there is no guarentee. I asked him today if he would treat me and he said no, a rhumatologuist. I am so confused. i thought I didn't have RA. I am stating to think that I am seeing the wrong kind of Dr. Maybe I should be seeing an MFM Dr. I called Dr. Alvarez office to get some information. According to his nurse he has see CHI and has treated it. I have an appointment at the end of November. More waiting!!!! I was hoping to ttc by now. Looks like it won't happen until next year!! This is so frustrating. I wish I was pregnant. Maybe if I was pregnant it would be easier to wake up it the morning. I wouldn't be thinking "oh, I would have been 26 weeks today"

I also found out that the baby was a boy. We named him Angelo or Angioletto meaning little angel. We burried his ultasound photos along with his teddybear under our favorite fig tree in the back yeard. My mother hung a rosary beads and a wind chime on the tree.



I love you baby boy... I will never forget you