“To be tested is good. The challenged life may be the best therapist.”- Gail Sheehy

The pathology report suggested CHI. Chronic Histiocytic Intervillositis. I have done a ton of reseach on it and have found only one other women who has it. It’s basically and immune problem where my body attacks the placenta filling up the spaces between the uterus and placenta with white blood cells cutting off the nutrients to the baby. From what I have read, it is uncommon and suggests poor fetal outcome. My OB referred me to an RE. I went three weeks ago. He tested my thyroid and ran tests for Rheumatoid Arthritis and Lupus. He was not sure if the CHI started once I got pregnant and continued until it cut of the nutrients to the baby or if the CHI was a result of the baby passing and my body trying to expel it. The tests came back negative and my thyroid was slightly off so he adjusted my medicine. I have to go back to him in 2 weeks. The RE was also supposed to go see my pathology slides, which he still has not done because the pathologist has been on vacation. So, I was very confused at to what my next step is. I also had told him that I tested slightly positive for rheumatoid arthritis when I was a kid so he made me track down those records and I plan on sending them to him next week. I asked him if he would treat me once I got pregnant or if an MFM would. He said that once I get pregnant I would see my regular OB and that he would refer me to an MFM. I asked him, if this CHI starts as soon as I get pregnant shouldn’t I be treated immediately and he said a rheumatologist would treat me with steroids. Couldn’t an MFM do this as well? Do I have to see an RE, OB MFM and a rheumatologist?? Should I make an appointment now with an MFM or wait?? If I make an appointment with an MFM will it seem like I am jumping ahead to fast? The waiting is killing me. I just finished AF and I though t I would have been able to TTC by now. What do you think? Wait for the RE or make an appointment with an MFM now? I want to trust the RE but I am so skeptical, considering that this CHI is so uncommon and not many Dr. know about it. I am afraid that if I get pregnant, by the time I get to see an MFM it might be too late. Am I just being over anxious? What are your experiences with MFM’s? Did you have prepregnancy consultations or were you referred after you got pregnant? I am so confused!!!....